April 3, 2017

Hi Gang:

For the past several years, many of you have been following my grandson, Gabe, and his battle with a very rare type of cancer. Gabe is now twelve years old, and a straight-A student in middle school, in spite of the fact he misses at least one week every month as he deals with his chemo treatments. His mom, Beth, sent out an update on his condition last week, and I wanted to share it with you:

From Beth: Gabe has been having really bad headaches for the past several weeks and he just has not been well.  On Monday, his blood pressure was very high also.  When Gabe started this chemo, 18 treatments was the most anyone had been on this chemo.  Gabe has had 29.  We knew that we were living on borrowed time with this.  The biggest side effect that they look for with this particular drug is peripheral neuropathy.  The doctor said that his headaches and blood pressure are indicators that it is setting in and it is time to stop.  She said if we continued to give this chemo, it would probably be just a couple weeks before he would not be able to walk.  Of course we don’t want that!! So, needless to say, he did not get chemo this week. We would have to wait at least six months before he would be eligible for this particular chemo again.

Gabe is very stressed and has a lot of worry over this, but he has continued to have a really good attitude about it.  After the doctor had explained all of this to us on Monday, Gabe was very quiet.  She asked him if he was ok and his response was “So you are telling me that I broke a world record with the most treatments of this medicine!” We all got a kick out of that!!

We now have a lot to think and pray about.  He is still on his weekly chemo pills and will continue to take those.  We are starting light therapy again 2-3 times a week, but worried that it won’t be enough.  Jamey and I would really appreciate your prayers as we seek to find the best option going forward.  We are looking into a lot of different options, including possibly taking him to an oncologist that specializes in this at Stanford University in California.  Please also be in prayer for Gabe.  While it is great that he is able to stay in school right now, the prospect of new treatments and doctors, and the unknowns ahead are very scary for all of us.

Thank you for the continued love and support you have all shown to us.  We are very grateful.

May I simply add, “Amen.”